Feudtner Lab

Children's Hosp of Philadelphia

Philadelphia · United States

NIH-funded
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NIH R01 · 2024

CCC EQUATE (Equitable Quantification And Task Evaluation)

Project Summary/Abstract Children with medical complexity (CMC) are an extremely vulnerable population with significant morbidity and mortality risk. To facilitate the study of CMC, Complex Chronic Conditions (CCCs) were defined in 2000 as a set of ICD-9-CM codes specified as “CCCs” with categories (such as neurologic, cardiovascular, metabolic, and other congenital or genetic defect). Three important concerns regarding the widely used CCC system motivate this proposal. First, the CCC system is now used “off-label” for different tasks including adjustment of health status in studies not specifically focused on CMC, and for the identification of children who might benefit from comprehensive…

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