NIH R01 · 2025
Caregiving network contribution to children with medical complexity’s health
PROJECT SUMMARY The quantity and quality of daily care needed by children with neurologic impairment (NI), i.e., a neurologic disorder with functional and/or intellectual disabilities, averages >50 hours/week and surpasses what is considered safe for one individual. Without support to accomplish these tasks, severe health consequences can occur, including severe illness exacerbations requiring hospitalization, missed school, lower quality of life, and financial and social hardship. In fact, 25% of all hospital days in children’s hospitals are for children with NI. To address these realities, families of children with NI attempt to create caregiving networks, e.g., extended family, home…
From the public funding record at NIH RePORTER. Describes the funded project, not the reviews below.