NIH R01 · 2024
SUMMARY People with intellectual or developmental disabilities (IDD)—a sizeable and growing population—now live longer and enjoy better quality of life than in prior decades. However, this group still suffers from excess morbidity, especially during adolescence and young adulthood, the time when they are expected to make health care transitions (HCTs) from child-centered to adult-oriented health care systems. Although it is likely that some adolescents and young adults with IDD experience high-quality HCTs, our understanding of how HCTs proceed longitudinally, in vivo for large populations of adolescents and young adults with IDD is extremely limited. At a population level, we do not know…
From the public funding record at NIH RePORTER. Describes the funded project, not the reviews below.