NIH R01 · 2025
Congenital heart defects are the most common birth defects managed in the United States, affecting 1% of live births. Survivors often describe significant, chronic disease. Yet, limited longitudinal data exist. Further, income and other demographics are associated with ~20% variation in mortality, even after controlling for clinical risk and center . Yet mechanisms remain unknown. Understanding how the healthcare system contributes to differences in outcomes across populations can reveal actionable targets. In our parent R01, we created the first, population-based, congenital heart data collaborative for assessment of risk-adjusted longitudinal outcomes and healthcare utilization: The…
From the public funding record at NIH RePORTER. Describes the funded project, not the reviews below.