Steen Lab

Leiden University Medical Center

West-Nederland (NL3) · Netherlands

ERC-funded
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Research focus

ERC Consolidator Grant · 2017

Attempts to Control the End of Life in People with Dementia: Two-level Approach to Examine Controversies

In dementia at the end of life, cognitive and physical decline imply that CONTROL is typically lost. I will examine control in the context of three emerging interventions which contain a controversial element of striving for control in the process of dying with dementia: advance care planning of the end of life, use of new technology to monitor symptoms when unable to self-report, and euthanasia. To perform outstanding research, the proposed research examines control at the level of CLINICAL practice, and at the level of end-of-life RESEARCH practice. The latter provides ample opportunities for researchers to control the research process and influence its findings. That is, the emotionally…

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