ERC Starting Grant · 2018
The Digital Disruption of Health Research and the Common Good. An Empirical-Philosophical Study
In the last three years, every major consumer technology company has moved into the health research domain. We are witnessing a digital disruption of health research, or a “Googlization of health research” (GHR). This project will be the first wide-ranging, interdisciplinary study of GHR. Its aim is to develop a normative framework for personal health data governance in this setting, where digital health and digital capitalism, and codes of research ethics and the lawlessness of the Internet economy, intersect. I contend that the most pressing challenge at stake in this new model of research is less the question of individual privacy than the question of collective and societal welfare, and…
From the public funding record at EU CORDIS. Describes the funded project, not the reviews below.